Friday, August 8, 2008

Welcome to Mom's fight against Pancreatic Cancer.

I have decided to leave this blog online, for an undetermined amount of time. Not just to give honor to the life of my mother. But also because public access allows this blog to raise some awareness of this terrible and all too often fatal disease. You will find the story of mom's sickness throughout the posts. If you or someone you love has been diagnosed with pancreatic cancer, please know there is always hope. People do beat it.

To learn more about pancreatic cancer please visit: http://pancan.org/Patient/pancreatic.html

This disease is often diagnosed at a late stage due to the lack of early onset symptoms and dificulty screening. It is very difficult to treat and the success rate for those suffering from this most terrible type of cancer is very low. On top of that hardly any progress has been made in the treatment of pancreatic cancer in the past 30 years. This is largely due to a lack of Federal funding, which attracts young "out of the box" researchers to the fight. These researchers are very much needed. I would ask you to support pancreatic cancer research through donating to one of the following organizations.




Sincerely,
Josh

Thursday, May 22, 2008


Tuesday, April 22, 2008

Wednesday, March 26, 2008

Eulogy

Mom

The words seem strange coming out of my mouth after all that we have been through, but I have been blessed by so much. In spite of the great trauma and hurt the last 2 and a half weeks have brought me and our family, I am reminded of what I have had. Not to long ago I was able to stand up here and talk about how beautiful my little brother Caleb was and is. I miss him everyday but everyday I am reminded of how blessed I was by him. And now I am honored to be able to say how blessed I have been to have Lynne C. Ott as a mother.

She will be missed very much by us.

She was our mom but she was also our biggest fan. I remember how proud she made us feel when she would look at Caleb’s pictures, or when she would visit Matt’s worksites or offices, or when she would call me to tell me Luke finished some more paintings. She would call me all the time to talk about my brothers and how talented they are and how beautiful they are. I would be amazed when, Jim, our multimedia guy here at church would tell me that four cds were requested of my last sermon. The next week he would hand me four cds with a smirk on his face and say “Could you give these to your mom for me.” Her I pod was filled with pictures of us, and Taylor, with pictures of our work and with pod casts of my messages. She just could not stop being proud of us and she could not stop expressing her pride to us. There was not a doubt in our minds that we were her world. That her family was what she loved most in life.

She was our mom and she was our protector. I remember the first camera I ever had was a gift from her. It was awesome and I loved it so much I was so proud if it she had entrusted me with her spare camera and she told me to take care of it. I took it down to hang out with the older kids in the neighborhood. I was probably around 6 or 7 years old, and in my youth I left it outside on a ledge down the street. When I realized that I had left it an hour had passed and I hurried back to where I knew it was to find the older kids playing catch with it. I ran home crying and my mom walked hand in hand with me to get it back. I remember her yelling at the older kids as I stood behind her crying. She retrieved my now broken camera and when we got back to the house she held me as I cried. She always protected us, she was our advocate, our fortress, and when we were with her we felt safe. Even as she fought cancer in her presence we were the ones being helped.

She was our mom and she was our comforter. The day after Caleb passed away I crawled into her bed. I was a mess and as I lay next to her and we cried together, my tears turned to sobbing, I felt her hand rubbing my back, and I felt like a child again. As she rubbed my back I felt calm coming over me, there was peace found in her touch, in her hugs, in her soothing voice.

She was our mom and she was our creativity. She instilled in us our love of the arts, our love of music and our love of creating. She was a creator and one of here greatest gifts to us was our gift of creating. Matt creating buildings, Luke creating beautiful paintings, Caleb capturing beautiful images on film and my ability to create programs and creative messages. While others bought VBS curriculum, she created it. Her classrooms became playgrounds, the church became a wonderful world for kids to come and learn about God to come and have fun. The church became a place where kids could be themselves.

She is our mom and she instilled in us a love for God. She loved him when things went great, when things at church got hard and frustrating; she loved Him when she was wounded, when she lost things that were dear to her. She loved him when she was diagnosed with cancer, when she was filled with fear wondering what the future held, she loved him when she mourned the loss of so many dreams she had for us, for our children, for her husband. She even loved him as we mourned the loss Caleb, taken from this earth at the age of nineteen, just over two weeks ago. And so while life has become extremely hard and painful, we will love him as she did.

She is our mom and she has given us so much. She gave us so much more than I could ever capture in words here tonight, but I will end with this.

She gave us our family. My mom and my dad have instilled in us this deep love for each other, which in all honestly makes all of this hurt so much more. But I would not trade the deep love we share for each other for a break in all of this pain.

It is this great love for each other that will make us whole again as we learn to live with the immense loss we now face. It is this love that will bring us and keep us closer as a family than we have ever been.

I can’t wait to see Mom and Caleb again but until then Mom is not only written on our DNA but she is also written on our hearts and minds and souls. She will always be with us, even while she is in heaven with her creator, with her savior and with her youngest, most beautiful son. We will always have her here in our family, in our love of God, in our love of life and in our great love for each other.

Sunday, March 16, 2008

Service Times

Viewing will be Monday the 17th of March from 4:30-7:00
A Celebration of Life Service will be held at 7:30.
For the gravesite Service, Tuesday the 18th of March, we will be meeting at the church at 10:00 AM.
All Services will held at:
Grace Evangelical Free Church
101 Graeff St.
Cressona, Pa 17929

Friday, March 14, 2008

Friday the 14th of March

Mom passed away at about 10:20 this morning. Her fight is over and she is resting in heaven with her son Caleb, whom I am sure greeted her with his famous grin and a big hug. Thank you for your prayers and support.

The family is having a peacful time together. We are not quite ready to receive sympathy calls from anyone. Please give us a few days to be with eachother and to rest.

Thursday, March 13, 2008

Thursday the 12th of March

Yesterday's procedure has left mom considerably more comfortable and has eased her breathing. Mom is receiving nutrients and fluids through IV. We continue to cherish your support and prayers.

Wednesday, March 12, 2008

Wednesday the 12th of March

We managed to get the doctors down here at Thomas Jefferson to drain mom's fluid today (with the help of some of mom's nurses). They drain 3800 milliliters. We hope that this has a profound impact on mom's comfort and quality of life.

Wednesday the 12th of March

Mom's condition has taken a turn for the worst. We are at Thomas Jefferson where we desperately await a procedure where they remove some fluid from mom. This would give her back a few days. Unfortunately they do not have mom scheduled for this procedure until tomorrow. Originally they had said it would be done this morning. We have urged them to do the procedure today but we are unsure if they will respond. Please pray that they would allow us to have this procedure done shortly.

Friday, March 7, 2008

Friday the 7th of March

Today mom headed to Thomas Jefferson where she will stay until Monday. They will try to help her gain strength until Monday where they hope to treat the newest complications with chemotherapy and radiation. The treatment for Monday is still unclear. Please continue to pray for her as she fights this disease.

Also please continue to pray for Dad, Matt, Luke, Josh and Mom as they grieve the home going of Caleb. He is missed every second of every day. We thank God that we will see him again but until then it will be hard without him.

Tuesday, March 4, 2008

Tuesday the 4th of March

Mom is in Thomas Jefferson Hospital. She needs to get a stint put in her artery to alleviate a blockage. This should alleviate her symptoms. It is an outpatient procedure that will either be done tonight or tomorrow. Hopefully they will be back by tomorrow morning. We have a private family viewing tomorrow at 1:00. We need a miracle right now to get her back here so that we can continue to grieve our loss. Please pray.

There is a memorial website for Caleb. www.calebott.com
You can log in using the username and password in the side column to write a post or add a picture.

Monday, March 3, 2008

Monday the 3rd of March

Mom is in need of your immediate prayer. She is having some physical problems, partly due to our loss and due to her condition. Please pray for her. They found a blockage during the ultrasound and she has an appointment tomorrow, but more immediate action may be necessary.

Sunday, March 2, 2008

Sunday the 2nd of March

Last night Caleb Ott, our youngest brother, was in a fatal car accident. We know he is with Jesus and in no pain, but it sure hurts down here as we miss him already. Please pray for us as we grieve the loss of one of God's most beautiful creations.

Friday, February 29, 2008

Friday the 29th of February

Mom was not able to receive a full treatment yesterday because her biliruben count was still to high. The big concern now is that there is nothing major effecting this count. Mom will go for an ultrasound today at Pottsville hospital. Our hope is that there is nothing major affecting this count and that whatever is causing the biliruben count to rise is correctable.

On a more positive note mom's weight continues to move in the right direction. Yesterday she weighed 96 pounds (some of that weight is due to fluid retention.) Also her tumor markers have continued to drop.

Tuesday, February 26, 2008

Tuesday the 26th of February

Mom will head down to Philadelphia for another chemotherapy appointment Thursday at 10:00. Mom's blood tests are very important this week. If her biliruben dropped she can receive a full treatment putting her back on a 21 day cycle. If her tests are not sufficient she will receive a gemsar treatment. Please pray for this important appointment.

Friday, February 22, 2008

Friday the 22nd of February

Unfortunately mom was not able to get her full treatment last week due to high biliruben counts. Dr. Mitchell decided to give her a gemsar treatment every week until her liver levels are ok enough for her to recieve the full treatment. Mom's chemotherapy includes three drugs. Two of them were administered this past Thursday. If mom's liver values are appropriate she will receive a full treatment this coming Thursday and go back on a 21 day cycle. If her biliruben is still high she will continue on weekly gemsar treatments until the full treatment can be continued.

Thursday, February 21, 2008

Thursday the 21th of February

Thank you all for your prayers and support. I just received word from my father from Thomas Jefferson. The new MRI did not show an increased size in the mass they were concerned about in mom's shoulder. Infact the MRI did not show anything more than the previous MRI(that is a good thing). This means that the mass will most likely not require any other form of treatment. Mom's weight was up 2 pounds and her blood work was ok so she is receiving her second treatment as I type this. During her first treatment her tumor activity reading from her blood work was consitantly dropping, during the second treatment it rose significantly. The test performed this week indicates that the tumor activity level is again headed in the right direction.

*Updated Correction: Previously I mentioned, as was reported to me, that the mass was not causing the problems with mom's right hand. This was not correct. The mass is contributing to the problems with mom's hand. But because the mass was not as severe as they feared no additional drugs will be added to mom's current treatment. The doctor said that, in time, as the treatment works, the symptoms in mom's hand will fade. Sorry for the mis-information earlier.

Tuesday, February 19, 2008

Tuesday the 19th of February

Tomorrow mom will head back down to Thomas Jefferson for another more specific MRI. The MRI will begin at 3:30 and will likely last 2 hours. Mom is anxious not only about the test itself but also about the results. Thursday mom will have her 2nd chemotherapy treatment if the blood work allows. Please continue to pray for mom as she continues to fight this disease. The next few days will be stressful so please also pray for her to be able to rest and have some peace.

Thursday, February 14, 2008

Thursday the 14th of February

Mom had her appointment with our doctor at Thomas Jefferson today. In spite of some bad news the appointment was a positive one. The unfortunate news is that they suspect there is a new tumor on the bone of mom's right shoulder. They are going to take another, more specific MRI, next Wed. to confirm and to decide what the appropriate course of action will be in dealing with this specific challenge. The most likely course of action will be the addition of a new medication that would specifically attack the cancer on the bone. The doctor told mom that she thought she looked better. The 2nd cancer treatment is scheduled for next Thursday and our hope and prayer is that as we get into the new treatment a few weeks that we will start to send the cancer into remission. The fighting spirit her boys inherited and, unfortunately, often misused is needed now more than ever. Please pray for and encourage this fighting spirit in mom. Thank you for your continued love and support.

Monday, February 11, 2008

Monday the 11th of February

Today mom is heading to Thomas Jefferson for an MRI on her neck and right shoulder. For the past few weeks mom has had a significant decrease in the use of her right arm. Her arm feels numb but and she has trouble using her right hand. Mom has been trying to do some exercises to increase the use of her hand but they do not seem to be helping. Our hope is that today's MRI offers us a simple and not very serious solution to this challenge. Please pray for the MRI that it would give some insight into the problem mom has had with her right arm. Please also continue to pray for mom's healing. She could really use you encouragement right now. Thank you for already playing a huge part in our lives.

Thursday, January 31, 2008

Thursday the 31st of January

As I am typing this mom is receiving her first new treatment. I am still unsure as to what exactly this treatment, but will update this blog with more details as I receive them. Her weight went up 1.4lbs, which is great. Please pray for mom's physical health as well as her emotional health. This long battle has been wearing on her as of late. Thank you all for your continued support and encouragement!

Wednesday, January 30, 2008

Wednesday the 30 of January

Well mom is back on the treatment schedule with her first new treatment scheduled for 10:15 at Thomas Jefferson. We are excited about starting this new treatment. Please pray that all goes well and mom receives her treatment and that it works!

Monday, January 28, 2008

Monday the 28th of January

Mom has received approval for her treatment, so she should be getting a treatment sometime this week. There are still soem insurance issues that need to be resolved so please continue to pray that all will work out in regards to these issues. Also mom has been struggling with some pain which as you could imagine makes the emotional fight tough as well. Please continue to pray for mom as she fights this disease one day at a time. We appreciate all you have done for us. Please continue to send your loving words of encouragment to mom. Thanks again.

Thursday, January 24, 2008

Thursday the 24th of January

Mom had her second appointment with Dr. Mitchell at Thomas Jefferson and will be starting her new treatment in the next week or two depending on insurance clearance. We would like to thank all of the Doctors, PAs and Nurses at Geisinger who provided mom with her treatment for the last 4 months.

Sunday, January 20, 2008

Sunday the 20th of January

Mom's appointment went great. Mom liked the Doctor at Thomas Jefferson who is also a researcher and helped develop the treatment she is on now. She has another appointment with this doctor Tuesday. Mom is no longer on the MacroBiotic Diet and is trying to put on some pounds. We will have more information this upcoming week. We would like to thank all of those who helped mom maintain her very strict diet while she was on it. Please continue to remember Mom. This treatment is still very hard on her system.

Sunday, January 13, 2008

Sunday the 13th of January

Mom's last treatment went great. Her blood work and weight were all okay and she was able to receive her treatment. Please continue to pray for mom as this treatment really wears mom out. Thank you all for your continued love and support. We have also started the process of meeting with a few other doctors to discuss any other possibilities in mom's treatment. It would be great if you could also remember these appointments in your prayer. The first appointment is this Thursday.

Tuesday, January 8, 2008

Thuesday the 8th of January

Mom's second trip to Geisinger for this new treatment is Thursday. Mom will get her labs done at 10:15, then she will meet with Dr. White at 11:00 and, if all goes well, will receive tretament from 12:00-3:30. This last treatment was very hard on mom's system, and the pain is still a struggle so please remember to pray for mom not only Thursaday but throughout the week as well. Thank you all for your unending support and love.

Thursday, January 3, 2008

Thursday the 3rd of January

Many people have asked for an update on mom's condition. While we are just one week into the new treatment mom's condition has been a struggle as of late. Mom is experiencing a significant increase in pain which has made it hard to maintain a balanced outlook. We are currently seeking the opinion from a few different hospitals on clinical trial options . Today is the best mom has felt since her last treatment, but her system is still out of whack. Mom has been struggling with doubts about her treatment and diet. Please pray for mom's current condition. She could really use your encouragement this week. Her next chemotherapy treatment is the 10th.